EACH’s Nook Appeal hits £2 million milestone as Bunwell family describes care as a ‘godsend’
The Nook Appeal, launched by East Anglia’s Children’s Hospices a year ago in a bid to replace their Quidenham facility, has reached the £2 million milestone.
Launched in the presence of the Duchess of Cambridge at the Norfolk Showground in 2014, the appeal is aiming to raise £10 million to build a new facility in Framingham Earl.
The current facility in Quidenham is described as “extremely restricted in its facilities and development,” and was converted from an old country house more than 20 years ago.
One family who have benefitted from the support of the Quidenham hospice is Simon Allard.
Two-and-a-half years old and living with his dad George, mum Fatima and twin sister Anabela in Bunwell, Simon has complex healthcare needs and requires one-to-one round the clock care to manage his symptoms.
He has Pfeiffer Syndrome; a condition where his skull fused before birth resulting in hydrocephalus (fluid on the brain), exorbitism (protrusion of the eyes) and breathing problems caused by blocked nasal passages and obstructive sleep apnoea, where the throat muscles relax or collapse during sleep. He also has Nephrocalcinosis (where calcium deposits form in the kidneys).
EACH and the staff at Quidenham hospice have been a godsend to us
Simon benefits from regular short-break care at Quidenham hospice which includes specialist nursing care and wellbeing support. He and his family have also attended special events and family support group sessions organised by EACH staff, both in the hospice and out in the local community.
“We were regular supporters of EACH long before our twins arrived; never thinking that we would one day be so grateful for their help,” said dad George. “EACH and the staff at Quidenham hospice have been a godsend to us. As parents, they’ve given both of us, and particularly my wife Fatima, a break from Simon’s care and this probably can’t be understood by people without experience of it.
“We receive invaluable care and support from EACH, but a new hospice will be able to better meet need and demand compared to Quidenham. A new hospice will make such a difference and it’s great to see the fundraising efforts going well to help reach a current figure of £2 million.”