Annie to walk 105 miles as to raise awareness of rare condition
An occupational therapist is about to walk a marathon a day to raise awareness and funds for research into a rare condition.
Annie Coomber-Briggs, 43, will set off from Corton in Suffolk on May 23 and walk 105 miles around the Norfolk coast to Sutton Bridge in Lincolnshire, arriving on May 26.
Annie, from Pulham St Mary, hopes the walk will help raise awareness and funds for research into a rare condition which has affected her godmother, Gloria, 74, from Kent, for the last three years.
The condition, known as cortico basal degeneration (CBD), is a degenerative brain condition affecting people aged 40 and above and is often misdiagnosed as other conditions, such as Parkinson’s.
“My godmother was a vibrant, social and kind lady, but she is now unable to walk or communicate and requires 24-hour care,” said Annie.
“The first symptom was an involuntary movement in her wrist, which then led to others, until she suffered a fall and was bed-bound.
“She also suffered cognitive problems, at first mild word-finding difficulties, to now, when she can’t communicate at all.”
Annie is planning to raise funds for the Progressive Supranuclear Palsy (PSP) Association, which provides help and advice for people and families living with PSP, a progressive neurological condition, and CBD, which affects more than 15,000 people in the UK.
Both conditions are incurable and caused by a build-up of a protein called tau. There are no simple tests or brain scans to diagnose either condition.
Annie is planning the walk with her best friend from school, Gemma Walker, who lives in Winterton-on-Sea.
People can support Annie by visiting goingforgloria.muchloved.com where she has so far raised £1,891.