A family is holding a charity golf day to raise awareness of the brain disease which killed their mother.
Corinne Walker, her brother James and their father John lost Pauline, 67, in July to
Progressive Supranuclear Palsy (PSP) – the neurodegenerative disease which killed actor Dudley Moore.
More than 10,000 people in the UK suffer from the disease, which takes away their ability to walk, talk, eat, drink and see but leaves them mentally alert.
"She was only diagnosed with the disease in April and the doctors had no idea how long she would live for," said Miss Walker. "We now think she could have had it for five to seven years – it's just that it's so difficult to diagnose.
"There are no drugs to help it and there is no cure – it's really horrible."
Mrs Walker suffered from osteoporosis and was hospitalised last February after falling over. She cracked her pelvis and bumped her head – something doctors have said could have speeded up the disease.
Mrs Walker spent four months at All Hallows Hospital, Ditchingham, before returning home to Old Buckenham to be cared for by her family.
"The doctors thought she might have had a stroke," said Mr Walker.
"But she couldn't straighten her feet and when the physiotherapists couldn't do anything with them, they thought it was something else."
After being diagnosed with the brain disease, Miss Walker contacted the charity The PSP Association for help.
"We were overwhelmed with support," she said. "The PSP Association for advice, the hospital staff and carers, friends and family.
"You sometimes think the culture of people caring has gone – but everyone has been great."
Mrs Walker spent the last months of her life watching sport on television, having lost both her mobility and her speech.
She died at home on July 23, hours after being tucked up in bed by her husband.
The sporting family felt it would be appropriate to raise money for The PSP Association with a charity event at
Diss Golf Club, where Mr Walker was a member for many years.
"Mum never played sport, but the rest of us all do and she was always there to support us," said Miss Walker.
The golf day will take place on October 24, when 18 teams of four people will play 18 holes of golf.
Anyone who would like to donate a prize for the raffle or sponsor a tee, can contact Mr Walker, 01953 860005.
The full article contains 413 words and appears in Diss Express newspaper.